May 25, 2024

Begins February 25, 2015

It’s Rare Disease Day this Saturday, February 28, an annual event designed to raise awareness with the general public and decision makers about rare diseases and their impact on patients’ lives.

Last year Denise Crompton penned “Diagnosis: Rare Disease.”  This book offers a compelling look at 13 families who received the diagnosis no parents ever wants to hear.  It is a heartbreaking exposé of what life is like for families that have a member with a rare disease. Crompton details the journey of each family, including her own, impacted by a rare disease called Mucolipidosis.

 I Am Not a Syndrome - My Name is SimonSheryl Crosier is the author of “I Am Not a Syndrome – My Name is Simon,” a gripping book that details the story of her son born with Trisomy 13.

 Starting Feb. 26, in honor of this important day, publisher All Star Press (Books That Change Lives) is offering two of the best books in the field at a significant discount. “Diagnosis: Rare Disease” is available in paperback for only $11.97. “I Am Not a Syndrome – My Name is Simon” is available for only $9.97 plus shipping and handling.   Click here to take advantage and support this sale.

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