One of the first books published by All Star Press was Sheryl Crosier’s story about her son. Entitled “I Am Not a Syndrome – My Name is Simon” the book detailed the difficult situations that the Crosier family endured in the weeks and months following the birth of their son Simon in 2010.
Simon was born with Trisomy 18, a genetic disorder. To the parents’ shock and dismay a DNR (do not resusitate) order was placed in Simon’s medical records without their consent or knowledge. This startling incident eventually led the Crosier family to push for legislation so that no other family would have to go through such a terrible incident.
Through her connections with the organization S.O.F.T., Sheryl eventually got in contact with Kansas legislators who submitted Kansas House bill 2307. The Kansas House of Representatives voted 121-3 on March 30, 2017 in favor of Simon’s Law. The Senate approved it earlier in a 29-9 vote, and the bill was then sent to Gov. Sam Brownback.
The first law of its kind in the nation, Simon‘s Law will mandate the following:
1. Parents receive written and verbal notification before a Do Not Resuscitate Order (DNR) is placed in a child’s medical file. Parents can then allow the order– or refuse it orally or in writing. Court access for disputes is delineated and the child remains safe during resolution.
2. Parents and prospective patients of any age have the right to request and receive hospital policies concerning “denial of life-saving care.” There is no mandate that hospitals have such policies.
“There is so much more to this story than reading of a little boy’s journey,” stated Pat Jonas, President and Co-founder of the Australian Rare Chromo Awareness Network (ARCAN). “It is learning about the legacy for which he was here. Simon will live on in the hearts of many and I feel he truly has a place in mine. I don’t see Simon’s life as a tragedy but as a beautiful blessing. God knew what he was doing when he helped to choose Simon’s parents, for they are the ones who will bring his mission to its full potential.”
We congratulate the Crosier family for their fortitude in getting this law passed, which will hopefully lead to all states passing similar legislation, and we thank the pro-life Kansas government for taking this step. To learn more about Simon’s short but amazing life, click here.
Diagnosis: Rare Disease [Kindle book] (Tarpon Springs: All Star Press, 2014)
Destined to Be a Classic!
“Rare Disease” — the diagnosis that no parent ever wants to hear.
“This book gives a heartbreaking exposé of what life is like for families that have a member with a rare disease,” explains Carolyn Paisley-Dew, ISMRD Board Member. “It follows the journey of 13 families who have one or more children with a rare disease called Mucolipidosis, as they wade through the erratic diagnosis process, medical muck-ups, endless pain, a plethora of medical appliances and home modifications, special education, multiple hospitalizations and surgeries, unrelenting stress and the ever-present fear of death.
The book highlights how stoic, resilient, strong and resourceful these families are, and how heartless, or thoughtless, some medical professionals can be. It underlines the importance of networks to allow these isolated families to support each other and to give them a sense of belonging.
Author Denise Crompton presents these stories in a style that is compassionate and easy to read.
Other families that are dealing with a rare disease will recognize themselves in this book. It is also a must-read for medical professionals, especially those who want to understand the families and how to best work with them during these difficult times.
Paperback edition also available here through Amazon
Angel Gabriel (Tarpon Springs: All Star Press, 2013)
Last Monday was the 20th anniversary of the crash of Comair flight 3272, the only domestic, commercial airline accident in the year 1997 in the United States. Author Joy LaPlante, a resident of Monroe, Michigan, was living nearby where the crash occurred, and this book, originally written and self published in 1999, details what she experienced.
In the winter of 1997, Comair flight 3272 departed the Cincinnati/Northern Kentucky airport on January 9. Stuck in a holding pattern well outside the Detroit airport, the plane crashed in the icy conditions. All 29 people aboard, which included three crew members, were killed. This was a national story that was reported on CNN, ABC, CBS, NBC Nightly News, NY Times and all leading news agencies.
Do you believe in angels? Yes, angels are watching over us. You’ll discover how in “Angel Gabriel – A True Story,” an eye-witness account by Joy LaPlante. Download today to your Kindle eReader, app, or the Kindle cloud.
Monday was the 20th anniversary of the crash that occurred in Monroe, Michigan. The husband of Vanessa Davis was on board this fatal flight.
Check out this Kindle edition of “Flight 3272” which details Vanessa’s journey through this dark time in her life.
Flight 3272 was an amazing book to read. I was blessed by hearing Mrs. Davis’s personal testimony of her life though a very difficult and trying time. No matter what difficult time you are in your life, this book will help u get through it in a positive and helpful way… ~ Amazon verified reader
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