“Destined to be a classic …”
Denise Crompton’s “Diagnosis: Rare Disease” offers a compelling look at 13 families who received the diagnosis no parents ever wants to hear. This gripping book provides a heartbreaking exposé of what life is like for families that have a member with a rare disease. Crompton details the journey of each family, including her own, who has one or more children with a rare disease called Mucolipidosis.
The stories wade through the erratic diagnosis process, medical muck-ups, endless pain, a plethora of medical appliances and home modifications, special education, multiple hospitalizations and surgeries, unrelenting stress and the ever-present fear of death.
“Diagnosis” is a must-read for medical professionals who wish to learn how to work with families in these difficult situations. Families dealing with a rare disease will recognize themselves in this book that is destined to be a classic in its field.
Within 24 hours of being released in September, Crompton’s book hit the #1 spot for paid books in the Genetics category of Amazon.
You will absolutely love this book or your money back.