All Star Press – Books that Change Lives – will be releasing the e-book version of “I Am Not a Syndrome – My Name is Simon”on Wednesday, August 29, 2012. The book by Trisomy mom Sheryl Crosier details the struggle of her son Simon from the early stages of pregnancy to his life here on earth for 88 1/2 days. During this same time, Sheryl confronts a sometimes difficult and indifferent medical system to advocate on Simon’s behalf. It is a truly inspirational and moving story.
“I longed to tell Simon’s story of hope, faith, love and the peace which God granted me,” explained Sheryl. “I want to help one understand the battles a family goes through and what a blessing life is no matter how short. It is evident that Trisomy 18 is a diagnosis, not a prognosis and a family’s love does not count chromosomes. Ultimately, God is our Maker and he knows our number of days. I write this book to demonstrate that our children are not a label and are not defects! They have a name and identity. They are children of God.”
“I’m Not a Syndrome — My Name Is Simon is an amazing combination of raw honesty, courage, determination, devotion and a whole lot of love.”
Gold Coast, Australia
“There is so much more to this story than reading of a little boy’s journey. It is learning about the legacy for which he was here. Simon will live on in the hearts of many and I feel he truly has a place in mine. I don’t see Simon’s life as a tragedy but as a beautiful blessing. God knew what he was doing when he helped to choose Simon’s parents, for they are the ones who will bring his mission to its full potential.”
Pat Jonas, President and Co-founder
Australian Rare Chromo Awareness Network (ARCAN)
“I Am Not a Syndrome – My Name is Simon” will be offered in all online e-book formats and available everywhere e-books are sold.
One thought on ““I Am Not a Syndrome – My Name is Simon” coming Wednesday”
This is a truly amazing story. The strength, faith and honesty that pours out of this book is truly heart stopping. I feel that after reading this book, the awareness of this type of birth defect and others like it need to be brought to the public’s attention. I pray for the Crosier family that their story will reach the hearts of people across the U.S. and with more research and awareness Trisomy 18 will be no more. Simon was and is truly a blessing! He has a place in my heart.