Books That Change Lives on Sale During Rare Disease Month

February 2021 is Rare Disease Month

Two Amazing Books on Sale 

Diagnosis_Rare_DiseaseOne of the main objectives of Rare Disease Day is to bring public awareness of rare diseases to both policy makers and the general public.  Rare Disease Day is every February 28th and the month of February is devoted to raising this public awareness.

In honor of Rare Disease Day during February, Denise Crompton’s “Diagnosis: Rare Disease” and Sheryl Crosier’s “I Am Not a Syndrome – My Name is Simon” are on sale with publisher All Star PressBooks That Change Lives.

Crompton’s amazing book offers a compelling look at 13 families who received the diagnosis no parents ever wants to hear.  Diagnosis: Rare Disease” provides a heartbreaking exposé of what life is like for families that have a member with a rare disease. Crompton details the journey of each family, including her own, who has one or more children with a rare disease called Mucolipidosis.

The stories wade through the erratic diagnosis process, medical muck-ups, endless pain, a plethora of medical appliances and home modifications, special education, multiple hospitalizations and surgeries, unrelenting stress and the ever-present fear of death.

“Diagnosis” is a must-read for medical professionals and front-line workers who wish to learn how to communicate with families in these difficult situations.  Families dealing with a rare disease will recognize themselves in this book that is destined to be a classic in its field.

February 2021 Sale

“Diagnosis: Rare Disease” is on sale this month only for the discounted price of $3.49 (normally $4.97) in the Amazon Kindle Store.  Order the paperback version today for only $15.97 $12.97 plus s/h.

A portion of proceeds from your purchase go to fund scientific research for cures!

 On Sale this month only $12.97 plus s/h   View Cart

 

I Am Not a Syndome“I Am Not a Syndrome – My Name is Simon”

Simon Dominic Crosier was born on September 7, 2010, in St. Louis, Missouri. He was diagnosed with Trisomy 18, and lived for 3 memorable months before passing away in December 2010. Despite his disabilities, Simon had a huge impact on all who came into contact with him. Simon’s big, expressive eyes communicated a wisdom that transcended his innocence.

The book is about Simon’s short and meaningful life, his family and his wonderful caregivers. But more importantly, this story documents the Crosier family’s battle to advocate for their precious son. They had to overcome challenges put in their way by the medical community and even extended family members who never valued Simon’s fragile existence.  The hope is that this story will help motivate health-care professionals and anyone else that reads this account.

“We want them to understand that special-needs children are God’s gift to us all,” explains Sheryl. “Their lives possess inherent dignity and value, and they deserve the best care.”

Simon’s book is on sale this month only for the discounted price of $2.99 (normally $3.97) in the Amazon Kindle store.

Order the paperback version today for only $11.97 $9.97 plus s/h.

    View Cart

 

DIAGNOSIS – RARE DISEASE

“Destined to Be a Classic…”

“Regarding the topic of Diagnosis: Rare Disease, Denise Crompton amply demonstrates two of her important assets: one is the personal experience with ML III in her own daughter and two, her manifest ability to widen the subject and to bring a streamlined report on a number of other patients and families with either ML II or ML III. The book is [destined] to become a classic in the still little known world of very rare or orphan hereditary disorders.” ~ JG Leroy MD. PhD, Professor & Chairman Emeritus,  Univ. Hosp. & Univ. Ghent

Faith Action Item for Today – Open That Book

But Jesus told him “No! The Scriptures say, ‘People do not live by bread alone, but by every word that comes from the mouth of God.” ~ Matthew 4:4

Are you reading the Holy Bible every day?  If not, make a point to start on one book of the Holy Bible and read through it in one week’s time.  A book like Romans is a good starting point as there are many vital lessons for life presented there by Paul.

Another idea is with Proverbs.  That book of the Old Testament has 31 chapters.  There are, of course, 31 days in most months. One chapter a day for one month.

Are the words from the “mouth of God” worth 5 to 10 minutes of your time each day?  Start today.

 

Read other Faith Action Items – such as “God was not in the Earthquake…or the…”

 

Micro Publisher analyzes growth of e-book sales

Author Walter Shiel has written several books on aviation and history. Shiel, who is also a regular blogger, takes a close look at his book sales over the last couple of years with a breakdown of each electronic book type, along with a comparision of book sales versus print sales. Interesting stuff for any aspiring author.  Take a gander.

A Steve Jobs Comic Book

Apple vs Amazon Steve Jobs

The late Steve Jobs

The comic from Bluewater Productions, which was first announced last June, is expected to show the history of Steve Jobs and Apple’s rise to the top of the technological heap. Of course, since the comic was produced before his passing, the paper copy will make no mention of when he passed away. The special eBook version however will make respectful mention of the end of his life. While those who use Comixology as their main comic book or eBook reading app will have to wait until October 27th to get the book, Kindle users will be able to download the book today and Nook users tomorrow. 

This is not the first time that… READ MORE

The Color Purple released as an e-book

Classic book released as an e-book

Author Alice Walker’s “The Color Purple,” a Pulitzer Prize winner in 1983 and still a widely taught and discussed classic, is finally coming out as an e-book.

But the classic novel in e-book format is not being released by a traditional publisher.

Open Road Integrated Media, a digital publishing company co-founded two years ago by former HarperCollins CEO Jane Friedman, has reached an agreement with author Alice Walker to release the electronic version of “The Color Purple” and most of her other work in the latest technology.

The Littlest Library in the World – Coming to your Town?

Terry Sennett & Claudia Cooley in front of The Book Booth

Thanks to Joseph-Beth Bookstore in Lexington, KY for finding this story.

On September 3rd, “America’s littlest library” – a library based inside a British telephone booth – officially opened in Clinton Corners, NY. It’s 3’x3’x8’ and fits two people at a time, as long they don’t mind getting a little cozy.

The Huffington Post interviewed Claudia Cooley, who came up with the idea, via email about the workings of the littlest library, why it has no security, and their unconventional plans for Halloween.

READ MORE ON THIS INTERESTING CONCEPT!

The Book Business continues to Evolve

The economics of the book business are changing so rapidly the publishing industry barely looks like it did just six months ago.

Divining the profitability of a book is a mysterious art. But basic book economics suggest an e-book is more profitable than a hardcover, even at substantially lower consumer prices, due mostly to the inventory and return costs associated with physical books.

READ MORE FROM WALL STREET JOURNAL BLOG

Online Bestseller Lists Key for Authors

Online Bestseller?How much do e-books benefit when they hit the Nook and Kindle bestseller lists? A lot, new findings suggest. Meanwhile, the New York Times bestseller list appears to have less effect on e-book sales.

“We found that there is a significant benefit to making these lists, and that benefit is far stronger for e-books than it is for print, where titles rise and fall in sales rank far more frequently,” he writes. “In fact, e-books that rise high on the bestseller list can normally look forward to a far longer time on the list than an equivalent print book.”  [LEARN MORE]